It is that time of year again. Fall is here, but for me I’m still in Summer. This past summer I made so many memories. I got in touch with one of my best childhood friends who is like a sister to me, I turned 21, and most importantly, I had a life-changing procedure.
Most of you that know me, are aware that I have a spinal cord injury, and for those of you who don’t know I have been paralyzed since I was two years old. I wrote a book of how it was like to grow up with my injury (you should read my book and learn what it was like to be me). One of the topics in my autobiography that I mentioned is to one day be off my vent and be able to breath on my own. This is where the life changing procedure comes in.
I was asked to write a blog post about what it is like to be able to sing on a ventilator.
That may be a future post. The truth is, I had a surgery called the diaphragmatic pacemaker. The title is self explanatory but because I’m such a saint I will explain what it is.
The diaphragm is the main muscle in the human body for the use of breathing. The diaphragm helps pull and push air in and out of the lungs. Due to my injury my diaphragm doesn’t receive the correct signals. Now I have wires connected to the inside and a plug to the outside of my diaphragm, where I connect a small machine that sends the signals to the diaphragm in order to make the muscle move. It has been one HELL of a process and still is a process relearning to breathe. On a lesser note I tell everybody I’m part cyborg (hint: to everyone who is “A Fault In Our Stars’’ fan, my favorite book!)
Now flash forward to the present. I am still training my body and getting adjusted to this pacemaker. I am exhausted and I hate to say it but I need to take my time with whatever I am doing. This is so annoying!!!! My mind is on speed but my body is like slow it down girl!!!! This is why I am writing this piece. I can’t do as much as I would like to but for now writing can help myself and hopefully others